The eagle has landed

On our 78th day, we were given a major breather from the 11th floor, South Tower. This is literally the first moment I’ve had to sit down since we got home Monday night around 9pm. Our doctor(s) decided it was time for some mental resuscitation, flora normalization, and a physical calibration, of sorts. Didn’t have to tell us twice.

Craig woke up twice Monday night to tell me how well he was sleeping, how confortable our bed is, and how soft our sheets are. We hadn’t slept there since November 9th. He arose yesterday a different person. I swear his energy doubled between 9pm Monday night and 8am Tuesday morning! He had some trepidation about coming home earlier in the day on Monday. The logistics - meds (despite my OCD proclivities), showering without any mounted handles (he has some muscle atrophy right now), blood products at the ready (platelets, blood transfusion), etc. One step through the door - arrivederci 👋🏼. We had a very full day yesterday, including about 4-5 hours at the hospital. That started again today at 7:45am and likely for the same amount of time. Today is checking back with the ophthalmologist, seeing a new optometrist (still some visual impairment) for a new/temporary prescription 🤓, and clinic for daily bloodwork and (at least) platelets. We are sitting in infusion as I type this. And lucky for us, one of our sweetest BMT nurses is filling in here today! Poor thing - she can’t shake us if she tries. We could potentially be home anywhere from 4-10 days (that was a pleasant surprise to hear). We visited with our doctor yesterday and he’d like to give the head as much time as possible to rest and heal without jeopardizing our chemo schedule. Two craniotomies in one month threw a bit of a wrench in the plan. They’d like to do everything possible to ensure less (no 🙏🏼) chance of reoccurrence down the chemo/BMT road. I have to believe that he has endured the last of this obstacle. He will have another CT on Thursday and Neuro/Oncology will assess chemo start date.

We haven’t had a very restful stay at home thus far, with all the coming and going, but hopefully that will start this afternoon! Even with the chaos, it’s still so nice to be in our own surroundings, detached from his Patient Pal IV pole (as if the name would endear it to someone 🙄), not having anyone ask about his bathroom habits, and insulated in a dark and silent PM. Unfortunately, he is carrying 25lbs of fluid retention, primarily in his legs, so by last night sleep was difficult. But he is weaning off the steroids so that should subside soon. 🤞🏼

While I love our early morning snuggles or afternoon naps at the hospital, the twin & 1/2 bed with side rails is not really made for two. What reassurance to stretch across the vast emptiness of the middle of a king bed and hear, “get those cold feet off me”. Sigh of relief at the realization - we are indeed back home.

Hoping we will still be home this weekend to sit on the back porch and enjoy some warmth and sun. Obviously after C finishes his long list of honey do’s. 😜

Hope this finds you all well,

C &A

After getting news of impending departure.....

Sending him off....👩🏻‍⚕️❤️

Just casually leaving - cool as a cuc

Morning 1 😊

Elevate those tree trunks where you can 😬🌳

😳 Pregnant Kim Kardashian? Roided out Craig? Who Wore It Better?

Platelets....and then hopefully couch and a movie